Creutzfeldt-Jakob Disease Surveillance in Texas: Texas Creutzfeldt Jakob Disease CJD TSE Prion Update Singeltary FOIA Request Received May 23, 2022

Texas Creutzfeldt Jakob Disease CJD TSE Prion Update Singeltary FOIA Request Received May 23, 2022

Tue, May 24, 2022 11:06 am

DSHS EAIDU.DataRequests EAIDU.DataRequests@dshs.texas.govHide

To Terry Singeltary flounder9@verizon.net

Cc DSHS EAIDU.DataRequests EAIDU.DataRequests@dshs.texas.gov

Hello Mr. Singletary,

Thank you for your inquiry. The CJD data you requested through 2020 is available below. This data will also be available on the Texas Department of State Health Services CJD data website in the next few days.

Texas Creutzfeldt-Jakob Disease Case Counts by Classification, Transmission Type, Disease Type

and Year (2011-2020)

Classification Transmission Type Disease Type 2011 2012 2013 2014 2015 2016 2017 2018 2019 2020 Total Counts

Confirmed Acquired vCJD 1 1

Confirmed Familial fCJD 3 1 2 4 1 11

Confirmed Familial FFI 1 1

Confirmed Sporadic sCJD 12 10 10 11 14 18 15 21 24 13 148

Confirmed Sporadic sFI 1 1 2

Confirmed Sporadic VPSPr 1 1 1 3

Probable Familial fCJD 1 1 1 1 1 5

Probable Sporadic CJD 5 10 4 10 4 14 8 11 17 26 109

Possible Sporadic sCJD 1 1 2

Total Counts 18 22 14 27 20 33 25 36 46 41 282

vCJD: variant Creutzfeldt-Jakob disease; fCJD: Familial Creutzfeldt-Jakob disease; FFI: Fatal Familial Insomnia; sCJD:

sporadic Creutzfeldt-Jakob disease; sFI: sporadic Fatal Insomnia; VPSPr: variably protease-sensitive prionopathy

https://www.dshs.state.tx.us/IDCU/disease/creutzfeldt_jakob/Data.aspx

Unfortunately, the 2021 CJD data cannot be released at this time, as 2021 data is provisional and still undergoing the verification process and will then be certified by the state epidemiologist. After this process is complete, the CJD website will be updated with the 2021 data.

Thank you again,

EAIDU Data Request Mailbox

Emerging and Acute Infectious Disease Unit

Texas Department of State Health Services

EAIDU.DataRequests@dshs.texas.gov

END

From: Terry Singeltary <flounder9@verizon.net>
Sent: Tuesday, May 10, 2022 2:12 PM
To: DSHS EAIDU.DataRequests <EAIDU.DataRequests@dshs.texas.gov>
Cc: DSHS hivstd <hivstd@dshs.texas.gov>
Subject: Creutzfeldt Jakob Disease TSE Prion disease DATA UPDATE REQUEST

Creutzfeldt Jakob Disease TSE Prion disease DATA UPDATE REQUEST

I have been trying to get the latest stats on creutzfeldt jakob disease in Texas for over a year, and it's always, something like; 'we hope to update the CJD data base soon'.

the last time i requested cjd stats was;

MONDAY, JUNE 14, 2021 Texas Health and Human Services The Department of State Health Services Creutzfeldt Jakob Disease TSE Prion Report 2021?

still waiting?

with great urgency, i request this information, especially since cwd tse prp seems to be heading for a zoonosis zoonotic call soon...

Thank You!

kind regards, terry

SUNDAY, MAY 08, 2022

USA National Prion Disease Pathology Surveillance Center Surveillance Update April 11th, 2022

https://creutzfeldt-jakob-disease.blogspot.com/2022/05/usa-national-prion-disease-pathology.html

TUESDAY, APRIL 05, 2022

Incidence of Creutzfeldt-Jakob Disease in the United States 1993-2014

https://creutzfeldt-jakob-disease.blogspot.com/2022/04/incidence-of-creutzfeldt-jakob-disease_5.html

MONDAY, JUNE 14, 2021

Texas Health and Human Services The Department of State Health Services Creutzfeldt Jakob Disease TSE Prion Report 2021?

Texas last CJD update was 2018...

Texas Creutzfeldt-Jakob Disease Case Counts by Type of Disease and Year (2009-2018)

Classification Transmission

Type Disease Type

2009 2010 2011 2012 2013 2014 2015 2016 2017 2018

Total Counts Confirmed Acquired vCJD 1 1

Familial fCJD 2 2 3 1 2 10

FFI 2 2

Sporadic sCJD 10 16 12 10 10 11 14 18 15 21 137

sFI 1 1 2

VPSPr 1 1 1 3

Probable Familial fCJD 1 1 1 1 4

Sporadic sCJD 6 8 5 10 4 10 4 14 8 11 80

Possible Sporadic sCJD 2 1 1 4

Total Counts 20 28 18 22 14 27 20 33 25 36 243

vCJD: variant Creutzfeldt-Jakob Disease; fCJD: familial Creutzfeldt-Jakob Disease; FFI: Fatal Familial Insomnia; sCJD: sporadic Creutzfeldt-Jakob Disease; sFI: sporadic Fatal Insomnia; VPSP: variably protease-sensitive prionopathy

https://dshs.texas.gov/IDCU/disease/creutzfeldt_jakob/Data.aspx

SNIP...SEE FULL TEXT;

MONDAY, JUNE 14, 2021

Texas Health and Human Services The Department of State Health Services Creutzfeldt Jakob Disease TSE Prion Report 2021?

http://cjdtexas.blogspot.com/2021/06/texas-health-and-human-services.html

TUESDAY, MAY 10, 2022

Concordance of CSF RT-QuIC across the European Creutzfeldt-Jakob Disease surveillance network

https://creutzfeldt-jakob-disease.blogspot.com/2022/05/concordance-of-csf-rt-quic-across.html

FRIDAY, DECEMBER 24, 2021

Creutzfeldt Jakob Disease CJD TSE Prion Update December 25, 2021

https://creutzfeldt-jakob-disease.blogspot.com/2021/12/creutzfeldt-jakob-disease-cjd-tse-prion.html

Saturday, April 9, 2022